Friday, August 22, 2014

Last Day of Basketball Camp

Today was Sebastian's final day of basketball camp. He begged me to come inside & watch but I couldn't with the Willowbug in tow. I was afraid she would get hurt. Last time I took her she wasn't able to stay off of the court. They've been scrimmaging at camp & Sebastian has shown me his dribbling skills at home - very impressive! Today he received a certificate for participating in basketball camp. I'm so proud of him. I'm probably going to either frame it or laminate it! :) Assuming it will survive years later after being laminated??

Sebastian & the aide had lots of outside play time with cars in the dirt. She worked on the signing flashcards with him. She's actually taking a sign language class at school. And his other aide knows sign language! We are so lucky!!! His speech therapist is recommending sign language -which is something we've been wanting to teach him for some time. His aide even gave him a bath today! She asked to wash his hair & I told her she didn't have to do that. She was eager to do it though & was going to try, but unfortunately there ended up not being enough time since this was near the end of her shift. Judah carried around his Wall-e coloring sheets all day - I had printed these from a site online. He didn't scrunch them up or tear them like he used to quickly do with his Thomas sheets we used to print up. With those he would enjoy them for 3 minutes & then destroy them. He's been careful with the Wall-e papers. Either he's learned to be gentle with things or Wall-e ranks pretty high above Thomas.. which would be quite an accomplishment for any toy or person, even Oprah!

The aide is helping to keep Judah off of the TV stand, which is great, especially since I can't lift him. He likes to jump on me from there. We are also making sure to keep the TV off when we eat & eat at the table - this goes for all the kids, but Judah gets the reinforcement much more often since he has an aide. I've also asked her not to allow him to eat while playing on the I-pad, phone, etc. Today I gave him a timer & let him play until it was up, then I took the I-Pad away and let him know that it was time to eat, which he did with no problem. That's our strategy, has been for a long time, but with the aide doing it as well, he will be experiencing it even more often - which hopefully helps him learn that playing & eating are 2 separate events.

The aide surprised me in that she liked the schedule the other aide had written up. I freely told her that she could make Friday his special day to deter from the schedule and do something regular with her.. which in a sense is still a schedule because Friday would be the day he always does such & such with the other aide. But she liked the schedule - she tried to adhere to that today. It was difficult. She followed his lead & taught him through whatever they were playing. Judah has learned sentences well through tactile stimulation at school. He used to touch the word on his book at school while saying it at the same time. "I want chips."- touching each word as he said it. But the words don't have to be there. I can say the sentence and touch him for each word & he will likely repeat it back. Maria was swinging him today (for 30 MINUTES because he wanted to) and she was working on sentences, saying a word every time she pushed him. She didn't know his history & success with tactile stimulation, so she had no clue what an ingenuous idea she had just come up with! That was awesome. These aides are hard workers & thinkers!!

Sebastian wanted to play in the sprinkler but Willow was asleep and Judah was taking a bath. I told him he could play on his own, but he really wanted someone to play with. Willow caught on to what he was doing after she woke up and saw him run outside. She said, "I want to get wet!!" Then she tore off her shirt (because brother was shirtless) and went out to run through the sprinkler with a big smile on her face. She isn't always excited about the sprinkler, but it's definitely growing on her. When she first played in it I remember she grabbed the extra sprinkler head and tried to throw it away!! haha. Sebastian had the water squirters that Granddad & Meemaw had bought them. Willow quickly figured out how to load these 12 inch Styrofoam tubes with water & started shooting! I went outside to check on them, only to be quickly sprayed down by the 2 year old with a perfect aim! Willow & Sebastian both laughed pretty hard about that. Daddy came home & told Sebastian firmly not to squirt him. Then he turned the corner where Willow was waiting on him with her squirter fully loaded. Daddy smiled at her, not expecting her to know how to use the squirter. "Daddy!" and then a big ball of water came flying towards him (as Sebastian describes it - he still laughs about it). Willow thought this was hilarious! Scott walked in the house, his shirt soaked, and told me, "Willow got me!!?!"

I went to Walgreens to pick up some medicine tonight & found clearance everywhere! They are trying to clear out for Christmas. ?!?! The manager told me the Halloween & Thanksgiving were stocked in the back when I reminded him about the 2 big events that happen BEFORE Christmas. Apparently other retailers are decking the halls over 4 months early as well. I hadn't been in our Walgreens for quite some time. I was really surprised to find that most of the same employees were still there! I was even more surprised to see that none of them had been promoted yet! Anyway, I stayed there much too long. I bought 4 pairs of really cheap flip-flops for myself and a bag of prizes for the kids (mostly to use for the boys' star charts). Scott was at home, concerned, because I had run down the street to Walgreens & had been gone for over an hour. He knew I had gone to buy ONE THING, which I didn't even come home with.. not the first time that has happened. ;)

Judah had one large bm today.

Meds Completed

  • Vitamin D3 2000 IU one daily(morning)
  • bethanechol 25 mg 1/2 tablet 2/day
  • Probiotic 1 daily in morning
  • DMG 125 mg w/Folinic Acid &Methyl b-12 3 capsules in morning
  • WP Minerals 1/day
  • Sleep factor
  • Creon (pancrilipase)
  • his b-12 shot 
  • Oxy-Mag Powder 1/2 teaspoon 1/day
  • Molasses 1 tsp in almond milk
  • Organic coconut butter 1-3 tsp/day  - 1 tsp
  • Levocarnitin 10% 1 Tablespoon 15MLS every morning
  • Iron up 1 tsp/day
  • DOCU 150/15ML Liq Hi-Tech 2 MLS/twice a day (We just switched this to ONCE a day today - done one time today.)

  • Meds not complete - 
    • Folinic acid to add to b-12 shot (we're out)
    • Fish oil
    • Miralax
    • Nebulizer

    Meds didn't take -
    • Beta TCP 1-4 daily
    • Powder B-6 1/2 tsp (fridge mix) every 3-5 days 
    • skin rash med not needed
    • eye drops!!!!!!! MUST DO TOMORROW!!

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