Monday, August 18, 2014

Star Charts for Calm Chores

Judah had some good sentences today - much like the usual but not asked to say them. Lots of repeating too. The helper who took him out today said she spoke a really big word that she can't remember, and he repeated it! Definitely a good day for that guy.

Willow & I had some Mommy/daughter time. I took Sebastian to basketball camp. Willow laid on the court & kept getting closer to the kids.. hoping to get "her basketball" back. Each kid had a basketball. I had to get her out of there with all those balls flying around. And I can't lift her. It was a challenge! Tomorrow we will drop him & leave!!! We left there early because of Willow's silly behavior - Willow ran to the playground & hid as soon as we left the gym! Worry was setting in.. then I saw her at the top of a swirly slide that has a nice hiding spot at the entrance. She used to hide there a lot during the school year, but I had forgotten. I had to bribe her with ice cream to get her to the van.

Sebastian was the only kid on the court who couldn't dribble when they first started. He was slapping the ball with two hands, hoping to hit it again when it came back up, concentrating hard. They took a break & I considered explaining "double dribbling" to him but instead just told him that he'll need to dribble with one hand. "I am! I'm just going back and forth from one hand to the other." He's totally right, it's a stupid rule. But 10 minutes later.. I kid you not, he was dribbling. He was even doing the baby dribbles on the floor & leading with confidence when it was his turn to be the leader (lots of leader games). He played the games with the kids with no worries & all the kids were so polite! The had to stay on the lines for some of the games. Sebastian took this rule, as he does most rules, very seriously. He was so concentrated on those lines. He was running on tight ropes, trying not to fall off while chasing & being chased by other kids. His method was much more difficult, but he pulled it off well! The kids were so polite. Three years from now they probably won't be apologizing when they almost run into someone from the other team. So I cherished the spectacle of sweetness in front of me.. things like that give you hope. I heard "I'm sorry" more times than I could count! They were working together too, helping one another as if they were all best friends. It was so cool to see. But then I'd notice Willow doing something dangerous for attention like laying on her back directly under the goal, looking at me with a smile. The calmness turned to stress in a millisecond. There are 10 kids in the camp- a couple more boys than girls. I was so proud of my kid. He is very likely a natural at basketball. We're definitely in the market for a basketball. I think both of ours have gone down the hill & been left to die. The ones they used today seemed a bit smaller - kid size?? Willow loves basketballs - I'm sure Bash will teach her some moves!

Judah had a couple meltdowns with a helper today. I need to write down some phrases for them to say. Since they don't live in the autism world they probably don't have "first, then" sentences engraved in their brain and the rule to use no negative words & keep sentences short & simple always on their mind.. and other stuff, basic stuff that gets drilled into your head from all directions when you first enter the world of spectrum living.

Judah spent half the day with a helper. The library was locked when they got there. Judah wanted to walk around and check the other doors. She said they walked around the entire library & checked each door. When he didn't want to do something she was able to wait - something I usually can't do because I'm rarely one-on-one like that with him. That's one of his calming methods though, waiting it out. They do that at school as well. She did really well. They did a lot of walking. They went to the park & he wanted to walk around instead of play! They rode the carousel a few times as well. She said he went from the lower bench of the wagon to the higher bench but never made it on a horse. He was treating her like family when they came back.. physically affectionate and asking to use her phone! lol (she put Angry Birds on it for him)

Another helper took over at 1pm. Judah nuzzles his face into her shoulder like she's a big teddy bear. Maybe that's how he sees her? ha. She's very sweet & goes above & beyond. She's got a big heart - a perfect match for Judah. (she's a fill-in, not a regular)

Judah & Sebastian have begun their star charts. Sebastian earned 30 minutes of a new movie today. He did lots of chores & had done some yesterday as well. He's doing chores & completely content about it. Maybe there really is something to these "star charts".

Judah had no bms today.
 Meds Completed
  • Vitamin D3 2000 IU one daily(morning)
  • bethanechol 25 mg 1/2 tablet 2/day
  • Probiotic 1 daily in morning
  • DMG 125 mg w/Folinic Acid &Methyl b-12 3 capsules in morning
  • WP Minerals 1/day
  • Sleep factor
  • Creon (pancrilipase)
  • his b-12/folinic shot 
  • DOCU 150/15ML Liq Hi-Tech 2 MLS/twice a day
  • Oxy-Mag Powder 1/2 teaspoon 1/day
  • Molasses 1 tsp in almond milk
  • Organic coconut butter 1-3 tsp/day  - 1 tsp
  • Levocarnitin 10% 1 Tablespoon 15MLS every morning

  • Meds not complete - 

    Meds didn't take -
  • Iron up 1 tsp/day
  • Beta TCP 1-4 daily
    • Powder B-6 1/2 tsp (fridge mix) every 3-5 days 
    • Fish Oil 
    • skin rash med not needed
    • Miralax

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