Wednesday, August 20, 2014


The helper wrote up a schedule while I was taking Sebastian to basketball camp this morning. She covered 9am-5pm, transitioning him regularly about every 15 minutes, except for lunch & the daily outing. After that she seemed much more relaxed & eager to jump in head first. I applauded her schedule & told her what I saw that I didn't think would work, which wasn't a lot. It will be tweaked quite a bit along the way I'm sure, but just having a schedule for him is awesome. They started it today - Judah did very well. She worked on sign language with him (which will be daily). Letters & number practice will be daily as well, as will art. There are also sections of time that are "choice", which means she gives him 3-5 picture cards to choose from. Each card is a picture of a different activity. This allows him to pick the next activity throughout the day & she follows his lead (very important). I'm curious to see how the siblings are going to react to this change. I will need to make schedules for them as well.

The helper has also been sharing some of her experiences with autism. She knows that world pretty well. She lives there too. A family member has autism - this person told her that autism makes you feel like people are just telling you what to do all day long, since they really don't know you - because you are literally unable to be who you are inside. He said he felt like he was wearing a mask. Autism makes it much harder for you to get your words out.. and many other things. It blocks you from being yourself. The mask was a really good analogy of that.

Judah went to the library & for a walk downtown with the helper today. The rest of us were at the dentist. It took about 30 minutes for my teeth cleaning. Then another 30 for the dentist to make his appearance. He had been working on the guy to my left before my cleaning had even started & was still there when my cleaning was done. Word to the wise, don't buy toothpaste that reads "tartar control". He gave me lots of useful info today, except for the story about his son's double a hernia. Totally unnecessary.

We drove home from the dentist. As we passed through an area close to downtown I looked out the window & noticed our helper, strolling down the sidewalk. ?!?!?!! Then I saw Judah lagging a bit behind her. I said, "Hey guys look, it's Judah!" Sebastian & Willow = "What??!?!!" That's definitely never happened before. The kids banged on their window, while I reacted by sticking my arm out the window, waving it around like a crazy lady. Obviously we don't see him strolling through downtown Salem very often. Neither Judah or the helper noticed us acting like complete idiots, trying to get their attention, which was good because who knows how Judah would have reacted. Apparently my brain had shut off & I had decided it was a great idea to stick my arm out the window to gain the attention of my pedestrian 4 year from across a lane of traffic. Gawd.

Sebastian had a picnic with Gramma & Papa today. The kids did the second step of Gramma's birthday project. It will be finished tomorrow - which is when she will drop by.

Judah progress, pretty awesome, definitely connecting with others. He sang the Wall-e song, "Out There" again most of the day. What was funny was when he walked into the playroom, joining his other 2 siblings, and just started belting it out!! ha. The words are getting more clear when he sings - it's definitely great speech practice. I've noticed he sings perfectly in tune from time to time. He gets that from me. ;p

Judah didn't poop today. Kept his underwear dry all day - was in underwear most of the day (probably why he didn't poop). He did well with the potty training, earning 2 more stars on his chart - which puts him at his first big star.. so he's due for some kind of reward. Ideas?? It's one of the many medium stars he will hit along the way to the big star (the BIG reward). Sebastian is nearing his 2nd reward.. he's hoping to stay up 30 minutes past bedtime for that one. Sure, we can do that! ;)

Meds Completed

  • Vitamin D3 2000 IU one daily(morning)
  • bethanechol 25 mg 1/2 tablet 2/day
  • Probiotic 1 daily in morning
  • DMG 125 mg w/Folinic Acid &Methyl b-12 3 capsules in morning
  • WP Minerals 1/day
  • Sleep factor
  • Creon (pancrilipase)
  • his b-12 shot 
  • Oxy-Mag Powder 1/2 teaspoon 1/day
  • Molasses 1 tsp in almond milk
  • Organic coconut butter 1-3 tsp/day  - 1 tsp
  • Levocarnitin 10% 1 Tablespoon 15MLS every morning
  • Iron up 1 tsp/day
  • DOCU 150/15ML Liq Hi-Tech 2 MLS/twice a day (We just switched this to ONCE a day today - done one time today.)
  • Fish Oil 
  • Miralax (twice)

  • Meds not complete - 
    • Folinic acid to add to b-12 shot (we're out)

    Meds didn't take -
    • Beta TCP 1-4 daily
    • Powder B-6 1/2 tsp (fridge mix) every 3-5 days 
    • skin rash med not needed

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