Monday, July 28, 2014

Sebastian's First Summer Camp

I actually meant to make a video of Sebastian describing his first day of summer camp & use that as today's blog entry. But that didn't happen, maybe tomorrow.

No helper today. However, Sebastian was at his first summer camp for a big chunk of the day so I just had Willow & Judah - which was fun. His summer camp was from noon to four. That's longer than his school day was last year! He had a blast though - splash pad, soccer, scavenger hunts, etc. He found the final flag & was the winner - he was very proud of that! There are 3 kids at the same camp that belong to two of my mom friends. Two of them are coming here for a play date next week actually. I was so happy that he loved his camp day!! Sebash used to be very scared of  being left anywhere new or starting anything new - like the Awesome 3000 or the first day of Kindergarten or Preschool morning drop-off for 2 years!!

Judah, Willow & I attempted to play outside - Judah couldn't take the heat and went to the inner garage door, telling me, "In! In!" just five minutes after we had stepped outside. He was absolutely right. It was oven-bake humans day! Willow of course resisted going back inside. After 10 minutes her face was already red & she was not doing much activity at all. It was just fire hot outside! After Bash got home we were able to play in the backyard, which was shaded by then.

I keep finding Willow talking to her stuffed animals as if they are real. Even if she spots you watching her she doesn't smile, she acts as if she has just had a completely real conversation with a stuffed wolf animal. Today she was telling one of them to stop biting her toes. She suddenly looked down at her toes in the middle of watching one of her favorite TV shows (Sophia the First). It genuinely looked like she had just been interrupted watching her show. She was not happy. Then she placed her dog on her toes and told him to stop biting her toes, haha! Last night she used a paper airplane as her "spaceship" and she was blasting off her My Little Pony.. "Three, two, one.. BLAST OFF!!" A lot of this was playing on her own. She's very creative. Not the typical girly girl stuff, more unique for sure. All of our kids are very unique.

The toilet was clogged all day - it's the Willow, every single time. It's insane. Then the ice machine on the fridge broke somehow. Then Judah carried in handfuls of dirt & poured them on the carpet & the couch. Why?!?!?!! While we were outside I caught Willow standing over Judah, slowly pouring handfuls of dirt on his head. He was sitting on the ground pretending his hand was a car, racing it around in the dirt. The dirt rain didn't bother him much, but it bothered me! She ran as soon as we made eye contact! Needless to say, Judah had a long soapy bath tonight. Judah & Willow started kicking the flowers along the house while we were outside. Why?!?!?!! Judah has a sudden interest in throwing handfuls of small things at the TV, like Legos, rubber Angry Birds, coins, you name it. Why?!?!?!?!

Scott finally made it home (he worked really late) and I literally laid down on the bed & fell asleep. Those kids wore me to the bone today.

Judah had a large, soft poop. Progress wise I didn't see anything new or surprising. While Skyping Mom & Dave, he ran up to the computer when they wanted to tell him bye. He seems to be aware & understanding fairly well. I was trying to get him to say "I want chicken" when he wanted chicken. He would only say, "Chicken please!" He does the same thing during speech therapy - adding please to the end of everything! He liked having his hair washed tonight. When I used up the last of the shampoo and dropped the bottle in the tub, he panicked, "Oh no! Bubbles!!" I showed him how to push the empty bottle underwater & make bubbles, but it didn't interest him. He needed it out of the tub quickly because it did not belong there. We're still trying to figure out where to go for a haircut - the attempt this weekend was unsuccessful, completely unsuccessful, he didn't even make it to the chair.

Judah was especially affectionate today- physically, lots of eye contact & saying "Mommy" a lot. He ran into the bedroom and found me tonight. He said, "Mommy!! There you are!!!" (that's new!) He was the same when Daddy came home, very happy & loving. Judah got himself dressed today. I had put his clothes on the floor for him & asked him to get dressed. Quite a while later, he suddenly took off his pj's & got dressed! Completely on his own! He is very resistant to going to the bathroom lately - we really need to work on that one.

Meds Completed

  • Vitamin D3 2000 IU one daily(morning)
  • bethanechol 25 mg 1/2 tablet 2/day
  • Probiotic 1 daily in morning
  • DMG 125 mg w/Folinic Acid &Methyl b-12 3 capsules in morning
  • WP Minerals 1/day
  • Sleep factor
  • Creon (pancrilipase)
  • his b-12/folinic shot 
  • Iron up 1 tsp/day
  • Beta TCP 1-4 daily
  •  Fish Oil 
  • Organic coconut butter 1-3 tsp/day  - 1 tsp

  • Meds not complete -
    There were in milks he didn't finish:
  • Oxy-Mag Powder 1/2 teaspoon 1/day
  • Molasses 1 tsp in almond milk
  • Levocarnitin 10% 1 Tablespoon 15MLS every morning
  • DOCU 150/15ML Liq Hi-Tech 2 MLS

  • Meds didn't take -
    • Powder B-6 1/2 tsp (fridge mix) every 3-5 days
    • skin rash med not needed
    • Miralax
    Meds we don't have - none

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