Monday, April 14, 2014

Hey, That's Our Life Exactly!!

Class was hitting home a lot tonight. I felt like I was talking too much. It was just that so much of what was being discussed was describing our life! I don't think I've ever blurted out so many things during a class before in my life! It was also a much smaller group tonight - lots of people were "no shows", so it felt more intimate and comfortable. I felt like we made some good connections. But now I'm obligated to email people with music therapy information, bring a toileting book to the next class for someone, email someone with support group info & I have a strong feeling we will be having some play dates too.

Class wasn't depressing like usual, however it was frustrating. The were a lot of different methods, preventions, cues, etc. brought up that we had tried before. She brought up visual cards & I told her that we had tried them (after no one else said they had). I stayed up nights making those damn things - and here we are, barely using them. I gave an example of how I created a "limit" for him today. She recommended using a "stop" card next time, since my distraction method was definitely not full-proof. We have a "stop" card. He knows what it means. We're barely using it because.... ?? There were many past methods that he had shown bits of progress with but we were unable to keep them consistent. That is one of the most frustrating things for me - keeping our life activities & methods consistent seems like an impossibility. After a couple of months they fade away & we don't fight to keep everything going & it's not placed as an extremely high priority. I don't know how to stop this cycle, except to just try harder.

So anyway, we have lots of work to do. Any motivation is gladly accepted.

Mom & Dave surprised us with a new micro! It has a kid safety feature (much needed as Judah has turned on the microwave while I was out of the kitchen & Willow will start once she can reach it). It even has a grill apparently! This gift came just in the nick of time. Trying 3 times to get the microwave started has now turned into 7-10 times. Sebastian thought it was great fun this afternoon to repeatedly try & start the microwave until it kicked on. He was trying to make popcorn. It actually shut down on it's own after a minute or so while the popcorn was still popping. It's like a lawn mower that you have to start by pulling the cord out, quick & high. Over and over and over and... finally!!!!

Judah progress is good - "I want" sentences are coming MUCH more naturally now. He's still not saying them a lot, but they are definitely there! And I'm doing absolutely NO prompting! The potty was an issue today though. He completely refused to go to the bathroom, EVERY SINGLE TIME. I didn't know what to do. The toilet training book that we got from the instructor tonight will be used for sure!!! Everyone in our class is having a really difficult time with this issue.

Judah was peeing to the point of getting his pants really wet at least 2 times today, maybe 3. And he refused to get out of them. He did not seem to be bothered by it at all. Our new worker is going to spend hours in the bathroom with him, waiting on him to do these things. I wait as long as possible before I have to tend to someone else, put out a fire, stop the dog from eating the lunches, whatever. If someone can stay with him & persist, he will do it, but we must remain consistent. I feel like I know how to teach him some things - I feel fairly confident that the methods in my head would work - but we don't have the time or ability to be consistent (apparently). If he was an only child I really do think he would be much different. It's not fair to him - we need to get someone to help.

The kids helped shred papers tonight. If you can find a job that your kids enjoy.. a job that relieves you of some work.. then I say take advantage! Eventually they will become bored with it or hate it or resent you for asking them to do it so much... I'm guessing. It's just so hard to pass up right now! I'm teaching you life skills guys!! :)

Judah is doing good lately with Scott leaving the room while he is still awake in bed. He has been tired though. But still, it's practice & it's a huge feat for him! The problem now is that Sebastian wants to get up & go to the potty, etc. if Daddy leaves the room that early. This is every single time. We are going to try & reward Sebastian when he does not do this. He takes care of all of his business before bed and then gets up to do it all over again if Daddy leaves the room early. Our kids are so complicated!!

Judah had 1 tablespoon (one dose) of the doctor prescribed L-carnitine. He had 2 doses of Docusate Sodium, 2000 i.u. vitamin d, three tablets 125 mg folinic acid with b-12, 1 tsp fish oil and no probiotic or nose drops (waiting to do lab). He had no Miralax . He took the sleep supplement, 5 - HTP (100 milligrams). He was already sleepy to begin with (spent time with Gramma/Papa tonight). He was in bed getting ready to go to sleep when I asked Scott to get him out for the rest of his meds. Needless to say, that little boy couldn't have passed a sobriety test after he took his sleep med tonight. Last night he woke only one time, but couldn't go back to sleep for an hour! He also took 1/2 a pill of Bethanechol in the morn, & the other half in the evening. He pooped once.

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