Tuesday, June 17, 2014

Covered In Goop!

Short blog tonight - Talana is starting tomorrow & I think it would be best to have the house in a somewhat organized manner.                                                                                               

Judah did really well today - lots of imitating & initiating play. He didn't play on  my phone or the computer all day long today. He never even asked to! That's pretty big! Those are really fun for him but they are also a time of solitude. He has pulled out of that isolated world so much. We really need to be conscious of doing things that will help him slip back into it. He was smiling & happy most of the day. He took a bath tonight. He did not want to get out. Then I said, "Do you want to get out and eat chicken?" and he said, "Okay!" and jumped out of the tub!

We played some more of the Thomas the Train board game. Unfortunately a train is now missing and the board is torn into two pieces. I'll fix it later & the train will turn up. The game will go on. To us, things like this are about as trivial as someone sneezing in the middle of a crowded subway. It sucks for a minute, then you quickly forget about it.

This morning I could not get to Judah fast enough after he had requested more Chex, which now sounds like "trash" when he says it. It's funny how some of his words have changed so much, many going in the wrong direction, not sure why? I heard Sebastian's alarm go off (the sound he makes when I need to come & see something). I wandered into the living room to find Judah sitting at the kitchen table. There was a box of Chex on the table, next to it was his bowl full of Chex. Chex were bubbling out of his bowl like soap suds. Apparently he had turned the entire box of cereal over & dumped it into his bowl. Then he set the box upright on the table, as if he had just poured a completely normal bowl of cereal. All of the kids sat down & helped him eat. Judah pretended to be Cookie Monster saying, "Cooookie!" and doing the "num, num, num" sound as he put his hands in front of his mouth, pretending to eat handfuls of Chex. And yes, of course, I got a picture.

Judah did well at speech. She said he didn't imitate a lot, but I could hear him communicating & repeating her a decent amount during the last half of his session. The first half I spent running to the bank and scrubbing down the passenger seat of the van. One of Judah's cups had spilled (almond milk) into the seat. This happened on SATURDAY. We had not used the van since. I found his cup, still dripping into the seat, right before we headed to speech this afternoon. The light inside the van was on too.. it was fire hot. Scott drove the van on Saturday. I had to wait a while before I texted him after finding all of this - I was not happy. The milk went through the seat cover & left a stain the size of a dinner plate on the actual seat. I got it out impressively well with Resolve though.

Judah's speech lady started him off in the gym this time. Good plan. I was happy about that.

All of the kids were pretty hyped up tonight. I tried to redirect them - I told them to go play trains. Then I went to put away clothes. Somehow the train play never happened and the kids ended up following me around, as well as hanging all over Scott. They had lots of energy. Of course this led to some Sebastian behaviors. He hit Scott at least 3 times.. I know one time was with a stuffed animal. Sebastian was standing right in front of Scott & he slammed him in the face with a stuffed animal. That resulted in a very loud Scott scream & a direct route to time-out for Sebastian. Sebastian did apologize on his own & told us that he was going to do lots of "respectable things" tomorrow. When I had him doing jobs yesterday he called it doing "respectable things". Obviously that doesn't make up for his behavior, but at least he is showing some kind of remorse & a pretty big gesture to do better by telling us he will help out around the house.

Willow got into the Vaseline tonight. I was in her room putting away clothes & pulling out a half dozen shoes she has grown out of. She was behind me, suddenly quiet. I turned around to see that she was slowly patting her hands & face with Vaseline. She looked absolutely fascinated with the slimy gunk. She had filled her plastic baby food dish with Vaseline too! Man. Vaseline is impossible to get off. She snuck into the Vaseline again one more time after that. She sucks her thumb to go to sleep. She was disgusted with her goopy thumb tonight, but bit the bullet & fell asleep as quick as possible! Later I heard Sebastian telling Scott, "I can't get it off!!!" He had used the sink faucet & bar of soap which were both covered in Vaseline. Ha! Even the light switch is greased up, yuck!! We are all moisturized & shiny for sure.

I put the knives up high today. Sebastian got to one of the steak knives last night - it was laying on the counter. He motioned as if he were going to stab Scott. Bye, bye knives. We need to get some of those magnetic child-proof locks, so we can use the kitchen cabinets to lock things away. The only thing we make absolutely sure is locked away is the hazard box that we use to dispose of needles. But there are other things that should be completely unavailable, rather than just being stored up high somewhere. They need to be locked up - kids can climb, especially Sebastian.. he's like a damn monkey.

Bash spent part of the day with Gramma, doing a nature walk, working on sight words, going out to eat, etc. She said he was very well-behaved. He was trying to be well-behaved after he got home. I could see that. Anytime I asked him to do something he did it - even putting away his laundry as I handed them to him & told him where they went. He HATES doing that - usually he will immediately walk out. I think the kids definitely need to learn that these things aren't Mommy & Daddy duties.. everyone needs to help. We are starting a bit late with him, obviously. We seem to be catching him at the tail end of the phase where kids are excited to help, sigh.

So much for the short entry! Scott will do the med list, goodnight!

Judah meds.
  • Probiotic 1 daily in morning
  • Bethanechol 25 mg 1/2 tablet 2/day
  • Vitamin D3 2000 IU one daily(morning)
  • DMG 125 mg w/Folinic Acid &Methyl b-12 3 capsules in morning
  • DOCU 150/15ML Liq Hi-Tech 2 MLS 2/day
  • Levocarnitin 10% 1 Tablespoon 15MLS every morningli>
  • Creon (pancrilipase)
  • Miralax 1-2 times day
  • Oxy-Mag Powder 1/2 teaspoon 1/day
  • Molasses 1 tsp in almon milk
  • Arctic Cod Liver Oil 1 teaspoon
  • Organic coconut butter 1-3 tsp/day
  • Powder B-6 1/2 tsp (fridge mix) every 3-5 days
  • Iron up 1 tsp/day
  • his b-12/folinic shot
Meds didn't take
  • Beta TCP 1-4 daily
  • Sleep factor
  • Bethanechol 25 mg 1/2 tablet 2/day
  • WP Minerals 1/day
  • Fish Oil 

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