Monday, June 16, 2014

The "Broken" List

Judah was especially responsive to his brother this morning. Answering "okay" & following through with whatever Sebastian was asking him to do. For example, he would climb up on the pillows if Sebastian told him something like, "Come up here!". Sebastian would say, "Ready Judah?" to which Judah would respond, "Ready!". Judah repeated a LOT of what was said around him today. He said "angry bird" numerous times when we were playing with the Angry Birds (play he had initiated). He said something to me like, "time to clean" when he had a poopy diaper & I had just told him to go to the potty. He would pat his bottom every time after he said it! While I was changing him he brought my face to his eye level and kept telling me something over & over. I couldn't make it out. He sang the clean-up song with Willow & I as we cleaned up our game. I had never heard him sing it for that long!! When we were playing the Thomas game, Judah showed that he could match colors, as well as repeat how I was doing things in the game like moving the trains down the line, space by space and filling them with cargo cards. Willow mostly played with the Rosie train during that game. Judah collected the trains & then said, "Uh-oh" and pointed to his trains, because he was missing a train. Then he tried to grab Rosie, the missing train, out of Willow's hands. He would say, "Uh-oh" if the cargo cards didn't fill all of the spaces. This play was all very interesting because Judah always plays on his own with the trains when we have this game out. He rarely uses the board or the cargo cards & definitely wouldn't be attempting to play the game with others, especially with such patience & showing how much he knew & was learning as we were playing.

Judah likes to watch some of his favorite television shows, especially Sponge Bob, and imitate the faces the characters make. He is unusually good at this. Sebastian is unusually good at imitating voices. He does Meemaw the best. ;)

Sebastian created many dangerous games this morning that I shut down either before he was able to start them or while they were taking place. Unfortunately we still ended up with a broken recliner & a chipped tooth. Judah was so frightened after his tooth broke. It is somewhat sharp & the gums above the tooth next to it don't look completely as they should. I'm going to see if we can get him into the dentist tomorrow. After talking with 2 different dental places today, Scott didn't seem to think that this was an urgent matter & made an appointment for a week from today! I feel Judah needs to be seen. He won't eat anything but very soft foods, like apple sauce & smoothies. One dental office Scott called was somewhere we have never gone. That dentist was recommended to us at one of the support group meetings. He is someone who treats autistic children. It sounded like they might be able to get us in, I'm not completely sure. Otherwise we go to the usual dentist & cross our fingers & toes that Judah's behaviors aren't bad enough to the point of them not being able to help him.

Will update on that situation tomorrow.

How the heck do you get rid of a broken recliner in Oregon?? Typically when I have a large, broken item that won't fit in our garbage can, I just put it on Craigslist in the free section. Someone will show an interest & pick it up, every time. But I'm not sure this recliner is fixable & I don't see how the material could possibly be salvaged. I will try though. If nothing else I'm sure we can pay the city to dispose of it. And we will have filled up our usual monthly portion of the city landfill with a chair.

Things that have broken in the not so recent past:
  • Dresser drawers
  • Dishwasher rack
  • Garage door
  • Toilet
  • Window screen
  • Refrigerator
  • Microwave
  • Coffee maker
  • Car
  • Chairs
I guarantee there is more that could be added to this list.

None of this has been difficult to dispose of, if it was necessary to do so. Actually we had to throw a computer desk out once.. that was a really tough one. I don't remember how we ended up disposing of it. I just know that we chose a route that seemed harmless to us & we weren't fined!

The kids got more train track in the mail today! They were stoked. Unfortunately Sebastian couldn't help Judah build a train track right away - but Judah really doesn't require help, Sebastian just builds really cool tracks. Sebastian had to instead unload the dishwasher. He was given jobs all day long. He helped me with whatever I knew he was capable of doing. Turns out 6 year olds are capable of doing many very helpful things!! Tonight he was misbehaving, acting out, even throwing trains at Daddy while Daddy helped him clean the play room. Sebastian was stuck in the play room for a good part of the evening as it was his job to get it clean. I felt the best way to do Judah's massage would be behind a closed door. Sebastian still interrupted us, but it was nothing major. The play room never got finished. After tonight's behaviors, Sebastian has to come home early from his time with Gramma tomorrow & is not allowed to leave with her until the play room is completely done.

Reward system is our next trial. Nothing else is working, at all. Sebastian was extremely upset that Willow & I were playing outside tonight while he had to clean. Willow & I played for maybe 10 minutes outside - it was chilly! Later, when Sebastian was calm, Scott talked to him about this for quite a while. Apparently he was still upset, it didn't seem to change his perspective on this situation & will likely be something he brings up repeatedly in the near future. This was nothing I did intentionally by any means. Unfortunately it's probably also nothing that he is going to learn from.

Judah had a big poop. Willow had a very bubbly bubble bath. Willow screamed for more orange juice all day long. She even demanded it when I was putting her to sleep!

It was a pretty lame day around here.

Judah Meds Taken today
  • Probiotic 1 daily in morning
  • Bethanechol 25 mg 1/2 tablet 2/day
  • Vitamin D3 2000 IU one daily(morning)
  • DMG 125 mg w/Folinic Acid &Methyl b-12 3 capsules in morning
  • DOCU 150/15ML Liq Hi-Tech 2 MLS 2/day
  • Levocarnitin 10% 1 Tablespoon 15MLS every morningli>
  • Creon (pancrilipase)
  • Organic coconut butter 1-3 tsp/day
  • Miralax 1-2 times day
  • Oxy-Mag Powder 1/2 teaspoon 1/day
  • Molasses 1 tsp in almon milk
  • WP Minerals 1/day
  • Sleep factor
  • b-12/folinic shot
Meds didn't take
  • Powder B-6 1/2 tsp (fridge mix) every 3-5 days
  • Iron up 1 tsp/day
  • Beta TCP 1-4 daily
  • Arctic Cod Liver Oil 1 teaspoon

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